Go Time

We just got LJ registered and are hanging out in the hospital waiting area. At the moment, LJ is scheduled for 1PM surgery, but the schedule seems to be pretty fluid - they just assigned us that time last night. We had a great morning - LJ had speech therapy and allowed Jenn to put her pinky in his mouth, without gagging or crying, for the first time in months. He sucked on it a little bit - enough to get Jenn and therapist in tears. Or maybe just enough to remind us that anything we can do to get rid of the NG tube is a good move. When Didi arrived to wait with us here, he gave her a big smile - he's been happy all morning.

Surgery to put in a g-tube is expected to take couple of hours, give or take, and LJ is expected to stay at the hospital for a couple of nights.

Thanks for all your thoughts/prayers/positive vibes. If you're in that mode, please include the Gillis family in your thoughts. We can't be with them physically, but we're thinking of them.