My little pumpkin's right hand is doing a lot better. He is now able to open it on command more frequently. So we're still moving ahead with his botox injections- for his right hand, fingers, bicep, shoulder and calf. We've been a little hesitant since it is essentially injecting a poison into his little body but I don't like the idea of withholding something that could potentially benefit him greatly. Parents have seen varied results- sometimes it is a huge help and others haven't helped at all. He's scheduled to have that procedure on February 9th. Our hope is that with increased aqua therapy sessions and OT post-botox injections we may be able to help him learn to use those released muscles so he can function better, manipulate and hold things longer. It is expected to wear off after 3-6 months so we'll have to re-assess at that point whether the progress is worth the risk of putting him under anesthesia that frequently. Here's a short clip from his OT session this week (he's even sitting unassisted for about a minute before he collapses back).
LJ's New Frontiers_January 17, 2011 from Jenn S on Vimeo.
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