Video-Feeding Camp Week 5

LJ has turned the corner from his awful flu/virus last week.  I am glad it is behind us and that his chest x-ray checked out fine.  But there have been too many highs and lows. For one, we missed several feeding sessions which seem to have set us back. We have been limited to juice and baby food in very small amounts ever since last Tuesday.  LJ is still having trouble managing his secretions but Dr. Eicher thinks we are ready today to put different textures back into the protocol again. And if we eat any more sweet potatoes I think LJ will turn orange!

The huge relief last week was the swallow study.  It holds such good prognostic value. There is no aspiration or misdirection of food.  His oral phase is slow and slightly disorganized still, but things do move smoothly through the pharynx.  Lew has the capability- he just needs lots and lots more practice and help. Only three more days to go! Nate is eager to feed his baby brother some yummy sushi now that 'he knows how to eat'.  I think we might have to transition to mac & cheese before sushi but that's just what I'm thinking.  What do I know? I am constantly reminded not to get too attached to the plan.  LJ is a brave and courageous boy!

What About Mac & Cheese or French Fries? St Joseph's_May 18, 2010 from Jenn S on Vimeo.