Noodles Unleashed!

We've been busy since the weekend and haven't had much time to post. Jenn and Aunt Kara have been taking Lewis all over town to various doctors and therapy appointments. The schedule will get a little bit more sane in the coming weeks, once we get through all of the initial specialist appointments. Thank goodness Kara is here to take care of us this week - three to two is a much more sane ratio of adults to children :)

Last Friday, the heart/lung Doc liked what he saw so much that he decided Lewis did not need to be hooked up to the monitor anymore. In the course of 30 seconds, Lewis lost 5 pounds (it was a heavy monitor - the size of a small laptop) and a bunch of wires. He's down to just the NG tube attached. Here are a few health updates:

• Lewis' left eye has become a concern. Over the last few days, it has stopped tracking as well as his right eye and seems to be crossed. The neurologist that he saw today has suggested we get him checked out by a pediatric eye doctor
• The rest of the Neuro visit went well. The doc definitely felt that Lewis has some deficiencies, particularly on his left side, but he was reasonably positive in his overall assessment and he thinks that we'll be able to wean Lewis from the phenobarbitol (seizure meds) soon too
• Lewis had a followup visit with the surgeon who operated on his tummy today too. The surgeon reassured Jenn that the retching is more or less like burping and not that unusual in this sort of situation. It is apparently more scary than severe. He suggested that we stop the feedings in the middle and "vent" Lewis' NG tube - effectively burping him - for a few minutes in the middle of each feeding
• Speech therapy started yesterday. We're working on getting Lewis to take a pacifier while he is being fed through his NG tube

Finally, we want to thank everyone, again, for being so supportive. Your words, deeds, thoughts, prayers and encouragement have been key. Each day gets us closer to being back to normal. We appreciate your help and encouragement more than we'll ever be able to say. Thanks again.