We hope his hair will come back quickly.
Yes, you can have a fauxhawk and a baldspot.(Do not attempt with a mullet)
For the last couple of days, Lewis has been having a little bit of trouble handling his feedings. Particularly at night. He gets about 3/4 of the way through and starts to retch some. He can't really throw up, because of the Nissen surgery, but it seems like that's what he's trying to do. He's seen the GI doc a couple of times for it, and we think we have some answers. We've been able to help the symptoms a bit by changing his posture and by venting his tube a little bit. They took an x-ray today, just to be sure there was nothing in the way (all clear). We'll try continuous feeding overnight tonight and see whether that helps. When the retching does happen, Lewis recovers very quickly, but it is clearly something we need to solve ASAP. In the meantime, we'll sleep when he lets us - just like the parents of any 2 month old.
Aside from feeding challenges and male pattern baldness, Lewis is doing well. He still makes a sport of tugging on his NG tube. If he has any say, there will be no recession for the company that makes that kind of tape. The sore on his incision is improving. We're looking forward to starting his PT and speech therapy next week. He's lost a little ground in feeding by mouth - still swallowing fine, just not very interested. Hopefully speech therapy will get him back on track.
Look into my eyes. You are getting very, very sleepy....In the meantime, Lewis is venturing further afield. Jenn has learned to operate the feeding pump from a small backpack, so the two of them can survive in the wild quite nicely. They don't even need to come home every 3 hours (but it makes things a lot easier). Lewis is busy giving his Nanny and Babu (Jenn's parents) a hard time tonight. So far, he hasn't peed on them, but the night is young.
We can't get over how much he looks like Nate. We can't wait to see everyone on Sunday! :)
ReplyDeleteJosh and Jenn, we left VT on Dec 21, came back for Carol's new knee on 25th, and are back now at the farm recuperating. How wonderful to tune in and see the amazing progress you are making with Lewis and to catch up through the pictures and to see you both looking well and together. So glad Jenn's parents are there to spell you during the night feedings or to let you rest during the day ones. Thank goodness the staph infection was not a resistant one. Lewis is making his way. You are making your way too with strength and that staying power of commitment to each other and your new son. Nathan, you captured our hearts first and now your little brother joins you there. Love, Carol and Paul
ReplyDeleteOh my goodness!!!! Who perfected that fauhawk??? It looks awesome!! I miss you Loo-Loo!!!!
ReplyDeleteYou too, Jenn & Josh! =)
-Kami, RN
Hey Jenn & Josh!!! (& Nate & Lewis!)
ReplyDeleteSo glad you are blogging so we can keep up with Lewis. I think of your family often and love reading about how things are going. The two of you are absolutely amazing parents. Keep positive thoughts and keep writing :)