Friday, December 5, 2008

Two months

Lewis is two months old today. We took some pictures, we'll try to get them posted soon. He is up to 27 ml/h of milk on continuous feed through the NG tube. That's probably a couple ml short of a 'full' level, for his weight, but he no longer needs IV nutrition or fluids at this level. The docs are starting to talk seriously about removing Lewis' PICC (IV) line. Maybe even tomorrow. We're pleased with the progress, but more than a little nervous about removing the line, especially given how traumatic it was to get an IV in last time.

Jenn seems to have pinpointed the issue with the lollipops - Lewis doesn't like the orange flavor they kept trying. He smacks his lips for watermelon dum dums. Who knew? I suppose he's got a right to be a picky eater.

No PT or speech today, but Lewis did try something else new. He'll need to hold still for a long time for his MRI next week. Last time he was intubated and they sedated him. This time, they're hoping to strap him down in a papoose board (more or less a straight jacket for babies). They gave it a shot today to see how he handled it. Once Jenn had him calmed down and sleeping, they strapped him in. He slept well for about an hour more without noticing, then he woke up and expressed his extreme distaste. Overall, pretty promising, but the timing will be tricky. We'll worry about that next week.

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