Don't be Rash

Lewis greeted Jenn, Susan and Raymond this morning with a wet crib. He had pulled out his feeding tube while no one was looking and soaked his crib with milk. (Susan and Raymond are Jenn's parents). Normally, we wouldn't be all that pleased, but suddenly, Lewis had no tubes attached. For the first time since the day he was born, Lewis had no IV, no feeding tube, no drains, no catheter or PICC. Jenn seized the moment.

Look Ma, no tubes!

Sans tubes, Lewis got cuddles all around, and a bath. Then the nurse put in a new tube. Lewis stayed awake and in a pretty good mood for his grandparents. When the speech therapist came, he ate a couple of ML's of applesauce. Applesauce is a little thicker and might be harder to swallow than milk, but the speech therapist thinks it will give him more time to react. He really seemed to enjoy it and he didn't cough. Afterwards, he sucked on Jenn's finger for a minute or two and promptly fell asleep.

When they returned from lunch, Lewis had pulled out his feeding tube again. This time they caught him quickly - the crib wasn't wet. With instruction from the nurse, Jenn put in a new naso-gastric tube herself!! This is something we'll eventually need to be able to do ourselves, so that's a great start.

Lewis is still suffering from a rash over much of his body. They aren't sure whether it is one rash that's spread, or multiple rashes. There are a couple of conjectures about the cause and they're treating his skin with various ointments, so we'll see what works.