Jenn and Josh left the hospital at about 1:30 pm on Saturday. Overall, Lewis is doing well.
Feeding - Lewis is getting 20 ml of mom's milk every 3 hours through the naso-gastric tube, they will be increasing that, and he may be up to 25 ml tonight.
Respiratory - Lewis is still on the nasal tube (nasal cannula) at 5 liters, but he's breathing a bit more easily today. He's also getting some respiratory therapy (sort of like a vibrating chest massager) to help loosen up anything in his lungs.
Vision - A specialist checked out Lewis' eyes today, she said everything is in order and looks normal. With infants, they really can't tell any more than that until about 4 months of age, we're told, so this only means that they don't see anything unusual right now.
Neuro - The preliminary read of the 24 hour EEG showed no seizure activity, so they are starting to wean Lewis from the phenobarbitol (anti-seizure meds). This may help his sucking reflex, which is lacking right now, and is a concern for feeding without a tube.
Holding and Feeding the Baby! Jenn got to hold Lewis, while Josh fed him today (using a syringe through the tube). He generally seemed more active and alert while we were there.
Hello from the Everetts in Columbus! Thanks so much for blogging -- we have been yearning for info but not wanting to be pests. Lewis is gorgeous! We send all our love and good thoughts to Lewis and Jennifleur, Josh and Nate. We will check in often. xoxoxo Shaun and Ally
ReplyDeleteSo glad to hear the progress Lewis is making. Lots of love to the whole family! Hopefully we will get to see all of you when we come to town next month - of course we understand that may not be possible. Let us know if there is anything we can do for you while we are in town. Love, The Ungers
ReplyDeleteFrom the Behars in Tahoe -
ReplyDeleteLewis is just gorgeous and so glad you are getting to be with him -
We keep you all in our thoughts and prayers.
Millie, Jeff, Zoe and Elijah
He is gorgeous and we are both thanking and praying for you. So happy to hear he seems to be making big strides.
ReplyDeleteLove Alex and Tas
What a gorgeous baby! I am praying for him. Lewis, you have a terrific family!!
ReplyDeleteLove
ally
ally.marshall@gmail.com