Friday, October 17, 2008
This blog has been created in order to help all our friends and family keep up with what's going on with Josh and Jenn's new baby. Lewis Jack was born on Friday afternoon, October 10th. Unfortunately, after a pretty long labor, Jenn suffered a uterine rupture as she was being brought to the operating room at Arlington Hospital. Lewis was delivered by emergency c-section. He was 9 lbs 1 oz and 22 inches long.
Jenn was very lucky; she is all sewn up and has an incision just as one would from a c-section but is doing fine. She was at Arlington Hospital until Tuesday morning recovering. Since Tuesday, she's been recovering at home, with frequent trips to see Lewis at the hospital.
When Lewis was born, he wasn’t breathing. Though his heart was beating, it isn’t clear how long his brain was without oxygen. He was initially treated in the neo-natal intensive care unit (NICU) at Arlington. After a couple of hours, he was rushed to Georgetown Hospital's NICU. Georgetown has a special fully body cooling machine which is used in the treatment of brain insults to infants. This is a very new treatment that is not widely available. (After the fact, we learned that much of the pioneering work on this type of treatment occurred at Georgetown). Lewis also suffered seizures and was immediately put on anti-seizure medication (a sedative).
The full body cooling began Friday afternoon, within 4 hours of birth. The cooling process is designed to slow the brain’s metabolism, preventing secondary injuries which are caused by the loss of oxygen to the brain. The doctors brought Lewis’ body temperature down to 33.5 centigrade (about 92.3 degrees F) and held it there through Monday afternoon. During this time, Lewis was breathing with the aid of a ventilator. Multiple tests were performed to assess the function of his heart, kidneys, liver and lungs. In general they showed that those systems were getting stronger, moving towards normal. He did continue to shudder or twitch occasionally, it looked like he was just cold, but it also might have been what the doctors call ‘subtle seizures’.
On Monday, October 13th, the NICU team warmed Lewis back to normal body temperature, over a period of about 6 hours. He came through the process well, with no additional issues surfacing, but he continued to have occasional subtle seizures.
Since then, Lewis has had a short hour long EEG which seem to be fine and a longer one which has yet to be read. He went back on forth on breathing support – on and off ventilation twice, but by Thursday, he was breathing room air (no additional oxygen) with just a nasal tube providing some added pressure. He was still having a lot of trouble with what the doctors call “secretions” (saliva and mucus) that have to be suctioned pretty frequently. Lewis is still being medicated for seizures but moves his arms and legs, clasp onto fingers, responds to light appropriately.
The NICU is pretty strict about visiting. Only two visitors at any one time, and one of them must be a parent. Jenn and Josh have visited daily and since Thursday have been able to hold Lewis. Grandparents Didi and Bop (Judy and Hank) and Babu and Nanny (Raymond and Susan) have spent time with Lewis too.
Nate, Lewis' big brother, is doing ok, with lots of attention from grandparents, his Uncle Danny and Aunt Anne, and his regular nursery school and babysitting routines.
Updates to this blog will be done regularly while Lewis is still at the hospital. Joanne, Josh's older sister, (that's Auntie Joanne to Nate and Lewis!) will help with this. Please feel free to leave comments, positive thoughts, prayers, good vibes, and anything else you want to say to Jenn and Josh here.
Thank you for all the love, support, and care you've sent to Lewis and family this week. We are very grateful.
Much love and many prayers. So glad to hear that Lewis is doing better and better. We look forward to seeing him at playgroup! -Amanda, William and Rylan
ReplyDeleteAlthough these updates must be so difficult for you- you both must be so exhausted- we appreciate your candidness. I am just one of so many that wish Lewis and all of you better times. Our prayers are with you as you navigate your way through these rough times.
ReplyDeleteLibby Chisholm
I could not imagine being in such a difficult situation that your family is in, but I admire the way you have handled everything. Stay optimistic and do your part-hopefully the rest will take care of itself. Lewis Jack is a handsome kid!
ReplyDelete-AZ
Dear Jenn and Josh, please know that you are in our prayers. I read this blog everyday and today I am having lunch with Susan to give hugs and love and support. May Lewis have a complete recovery and grow to play and laugh with his brother and be a blessing to your family always. With my love, Lea Solomon and my partner Bob Holsten
ReplyDelete