All in all, a good week was had by all. We paid a visit to the physiatrist earlier this week. She checked LJ's DMO suit, foot orthotics, splints and overall functionality of the muscle tone. We're proud to report that we are not needing to do botox for the muscle tightness right now. She feels the DMO suit is working & wants to see how things progress naturally! Lewis is able to sit in a propped position for quite a little while before falling backward. The thought is that once his Gtube is permanently removed in the Spring he will gain even more core strength. No botox = really good news.
The other great news is that a new, local Hyperbaric Oxygen Therapy clinic has started seeing young patients with CP and also autism. I toured the facility on Friday and was impressed with what I saw. The last time we did HBOT treatments we really saw an overall improvement in LJ. Sadly they were a mobile unit and moved to Wisconsin for awhile. That was in February 2010. So since we are a no-go for the botox, I think we are going to try to find a way to do 20 sessions at this new HBOT place.
And the last bit of fun news is that Nate and I are off to join my dad, brother and nephew in Park City for a little skiing and tail end of the Sundance film festival. Nate is so thrilled to see snow. (They got a foot of snow last week.) Whereas we had a couple inches here in NOVA which promptly melted overnight and turned our front yard into an icy mess. That didn't matter; Nate still wanted to wear his snow boots and play outside...making crunching noise on the ground and picking up ice blocks and launching them at stationary objects. Magic carpet ride here we come!!! {Checking out the adaptive ski program for LJ for the next time we're there too}.
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