On Tuesday morning, I received a call from LJ's wonderful teacher, Ms. Julia. She was concerned about him. My heart pounded. She is the most capable person you'd ever want to leave your child with so when she says something's not right it was/is alarming. Cue the worry.
LJ pointed persistently at his head to tell them his head hurt. He started voluntarily using his right hand for every task that was set forth refusing to use his preferred, more functional hand. And then during snack, LJ turned bright red. The teachers and therapists that were there, took him out of his chair and put him on the floor in a quieter area of the room. He was listless and confused. He could barely open his eyes and when they were squinting they could see the whites of his eyes were bright red and the pupils were very large. When I arrived at the school he was still really lethargic and disoriented. But for the most part he had recovered.
We visited the pediatrician and afterward went home (armed with referrals) where LJ napped for several hours. He really wasn't acting like himself the whole day.
There is a chance this episode was a seizure. Its also possible he had an allergic reaction to something. So we have an EEG scheduled for tomorrow afternoon at the neurologist's office to see whether this was a fluke or whether there is additional seizure activity. We have an appointment on Monday with the pediatric opthalmologist since it was evident that LJ was feeling pressure behind his eyes.
All day yesterday, I had my phone attached to my hand...fearful of the chance that it could happen again. (That and then speaking to the dr and then insurance and then the scheduler). I am on it! Seizures aren't new to the scene; LJ had them right after birth. He used to take Phenobarb when we first were discharged from our initial hospital stay. But the seizures seemed to have stopped. All this to say, there's never a dull moment around here. Ugh!
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