More of the same, but we're learning to enjoy these low key days. Last week gave us a good bit more perspective. Lewis is healing a little bit at a time, but he seems to be comfortable and there is some progress. He is now taking 10 ml/h of milk through the g-tube. The surgeon is pleased with the way the g-tube is healing, though there is a little bit of a skin infection around it, he's now on a topical antibiotic for that. When the surgeon thinks the swelling has gone down enough, he'll do another barium survey to determine what needs to be done to move the g-tube, if anything. Until then, we just work on getting better.
Now that they're weaning Lewis from the Fentonyl (he's down to a dose every 8 hours, today), instead of going cold turkey, Lewis is a much happier guy. He was calmly awake and fell asleep in my arms for an hour today, and then I watched him sleep for a while when I came back later. He was a little bit more lively with Jenn, but not terribly fussy for us or the nurses. We did notice that his arms are really stiff - he likes to keep his fists right up near his face, and they're very hard to move. Hopefully, physical therapy will start again tomorrow, and we'll go from there.
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