Not sure anybody is here anymore, reading this. I've written several posts in my head...but that's where they stayed. So I figured I had better jot some updates down. Been trying my best to slog through mommy role, yoga-teacher role and daughter/wife/sister/friend/chef/housekeeper/playground-monitor role. Let's see. Thanksgiving happened in Durham at Mema and Papa's house.
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Dougan, Marcy, John and Josh cooking in the kitchen |
Then it was my birthday. Had lovely celebrations here
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Such a beautiful soul! Love me some Lyon Hall too:) |
and here
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Full tummies and Full Hearts |
Bigger Excuse #1 Neurology and ENT appointments...it had been so long since our last appointments that I almost forgot how tired this gets me. LJ still doesn't sleep properly. At his annual check up this was the topic du jour. His pediatrician put in a referral for us to go see his Neurologist again. We discussed the muscle relaxer he takes and perhaps he's outgrown the dosing. So the Baclofen has been increased and we've procured a doctors note so he will go to the nurses office at school at get a dose mid-day. He now gets 4 ml by mouth three times a day.
Ear tubes plopped out. Well, one did at least. The other was stuck in the ear but wasn't helping matters. Doc couldn't see behind it so I had to pin him down while the doctor took an instrument and scooped the lil tube out of his ear. He had another bulging ear infection behind where the tube was stuck. LJ will have his last dose of Amoxicillin tonight.
Last but not least, Dr. E prescribed Artane for Lewbug. It also goes by the generic name Trihexyphenidyl Hydrochloride. He's on the very low dose of 3 ml by mouth two times a day. It's in the family of drugs used mostly to treat symptoms of Parkinson's disease. We began 3 weeks ago increasing his dose gradually. This Saturday marks the spot and we'll observe how he does on the drug. Hopefully it makes it a little easier for him to move his body. His fluctuating tone makes it challenging for him to grab anything or keep his balance. I've noticed he has less secretions which is a known side effect of this medicine so that's a plus.
Excuse #2 We've been taking turns sleeping on the floor in LJ's room. It's the only way we can keep him safe at night. The novelty of the video monitor has worn off. Despite the bathroom light left on all night, the noise machine lulling surf sounds, and a cocktail of sleep meds, Lewis has reverted back to banging his head until we intervene. A mattress has been temporarily moved into his bedroom. The air mattress sits in the corner. I'm beginning to think we should hire a night nurse. Sigh. Until then, we eagerly await getting one decent night's rest.
Excuse #3 Physiatrist Saga. The back story: our old physiatrist works at Children's Hospital. They have an annex in Fairfax which made my life a tad easier for scheduling appointments. The school physical therapist and private physical therapist think his calf muscle is too tight. Because he doesn't ever get his heel down on the ground, he can't make progress learning to walk in his gait trainer because he overcompensates on his other leg. Cut to the chase, our insurance company denied our referral to go back to see our doctor. The HMO now has a pediatric physiatrist in network that is only a short 45 minute drive (without any DC traffic) in Prince George's County, MD. They wanted us to go to them. So in the process to appeal that, I worked another angle. Dr E (our in-network Neurologist) wrote in her case notes that she believed Lewis would benefit from botox injections under anesthesia. She recommended he be referred to our 1st choice phsyiatrist at Children's. Friggin minor victories but low and behold we were able to get the decision reversed! So we will traipse to Children's for our botox consult in February.
These feelings won't go away. There's a quote by Karen Maezen Miller: "As the kids step forward, they give birth to themselves; as the parents step backward, they give birth to a young adult, as painful as it is." My baby will always be my baby. I get sad when I think about him one day going off to college and the house being so much smaller, quieter, weirder. Anyhoo. He turned 9.
Call me bat-wing mad, but we hosted 9 boys for a slumber party to celebrate the occasion. This in turn made for a long, crazy, cranky weekend. For your amusement, here's a sample conversation whilst playing the new PS3: "They're playing against the mets again." Other kid "They win." Over top of that kid "Woot!" Another kid "Yuck. Who farted?" Coupla kids "Uuuck." B "I ran out of Twizzlers." First kid "That's not how you play. They don't even know the rules." Someone else, "I'll be right back." Second kid, "Where you going?" Someone else, "I'm just gonna go around and pet Annie." Since I don't sleep these days anyway, it was good prep for the sleepover. The quiet room had 3 sleepers. By 11pm, not a creature was stirring, not even a mouse. But the rambunctious room could not be persuaded to sleep. By 12 am they were finally quiet; only to wake me up at 3am. And then for good up at 6:30am playing the PS3 again. I think its a Christmas miracle that I was able to get all their teeth brushed the night before. Meh, everything else was uphill after that....

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When did they get so tall? Crowded around the game |
Oh, and I am planning a me-cation. Booked my flights to India. Taking the trip of my lifetime with my mom, sister and niece. I'm so excited!! And I just can't hide it!! I know, I know, I know, I want to!!!! On tap are trips to an Indian family to learn their cooking style and enjoy a meal with them, the Taj Mahal, multiple bazaars, rickshaws galore. This Rajasthan Elephant Ride is also on the itinerary.
Oh yeah, though it may not seem like it, I truly am practicing what I teach. I'm trying to learn to say "No, it's too much." That's my new mantra. If I repeat, repeat, repeat perhaps it will actually come out of my mouth when I'm just wanting everyone to be happy but in the longterm it really doesn't serve me well. It is what it is. I'll keep you posted.
Hello. How are you?